Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking. The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities.
I was recently diagnosed with HSD and I just moved to Vancouver from Toronto. In Ontario, they have a special clinic for EDS but as i was looking for a clinic in Vancouver, i realized that they don't have one. Does anybody know of doctors who have knowledge about HSD?
Hi klawrence0177! The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD. I also recommend checking out their Support Group and Charity Directory and searching for regional Facebook groups for people with EDS and HSD. These groups can be super helpful for finding local resources and ...
Hi Lily_tar, This webpage has some information about skin hyperextensibility in EDS and HSD that you may find helpful. Under the FAQ section at the bottom of the webpage, there is a section titled "How is skin hyperextensibility measured?". If you click to expand this section, there is an illustration of skin hyperextensibility of the volar surface of the forearm.
The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner.
Yes, it is possible to have both Hypermobility Spectrum Disorder (HSD) and Ehlers-Danlos Syndrome (EDS). HSD is a condition where individuals exhibit excessive joint flexibility, which can be associated with musculoskeletal symptoms.
Hi Mary_butterfly! Some people who have EDS and HSD find massage therapy very helpful. As other people have already mentioned, be sure to inform your massage therapist about hEDS and the symptoms you experience. Most types of gentle massage are safe for people who have EDS and HSD. It is best to avoid forceful manipulations and/or any movements that cause joints to sublux or dislocate. I hope ...
Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders EDS & HSD Support Community The Ehlers-Danlos Society | EDS Global Patient Registry | HEDGE Study | Helpline Home Discussions Members About Back to Discussions
Here is info on ehlers danlos support groups in NC--these groups tend to maintain lists of EDS knowledgeable health care practicioners and may be able to help: "Charlotte Come talk, listen, and enjoy being around EDS'RS, Chiarians and More..Bring someone with you, bring a pillow, bring anything you'd like to share with the group! We meet every 2nd Saturday of the month at 1pm-3pm at Julia's ...
